Can You Help? – Chris’s Cancer Community

Posted on by Pencis

[ad_1]

I’m struggling to see the subject of cancer raised anywhere in mainstream news these days. However that doesn’t mean that the issues have disappeared. Quite the reverse of course. The situation for all of us is worsening by the day, but that doesn’t stop us from trying to improve things for our children and grandchildren. In my work I get to speak to so many wonderful people doing just that, and one of these is Lynette. She is looking for help to solve on of the biggest current inequalities in cancer within the UK

“My name is Lynette and I am a trainee clinical psychologist from Canterbury Christ Church University, UK. I am conducting a research looking into the experiences of cancer and cancer care amongst young people from ethnically minoritised backgrounds.

cancer health disparities across different ethnic groups have been widely documented. In particular, low awareness of cancer symptoms, low participation in cancer screening programmes and delayed help seeking behaviours were more likely to be found in ethnically minoritised groups. Many patient experience studies have highlighted reports of poorer experiences of cancer care, quality of life and health outcomes amongst these ethnically minoritised populations. These aspects of cancer experience have been shown to be associated with cultural beliefs, misconceptions and stigma around cancer, for instance barriers to help-seeking, adjustment to diagnosis, illness disclosure and coping strategies.

Whilst there is a growing body of research shedding light on the lived experiences of ethnically minoritised adult cancer patients, only little research has been undertaken with the younger population. When presented with a life changing physical health condition during this developmental trajectory, adolescents and young adults are confronted with significant psychosocial challenges that interfere with their roles in relation to family relations, peer networks, education, employment and future aspirations. Research has shown that ethnically minoritised young people with cancer are more likely to have additional unmet needs, poorer quality of life and experiences of care. This population is faced with a ‘double disparity’, where they have to cope with cancer amongst challenges at a transitional age in tandem with barriers associated with identifying as ethnically marginalised. Yet there is little research looking into the challenges and unmet needs these young people face. I am interested in learning from young people’s personal experiences to help us understand better ways of supporting them in the service.“

Looking for young people to help us improve cancer care. (UK only)

🚨Share your experience & earn a £10 voucher🚨

Are you:

✅ Young person with experience of cancer

✅ 16-25 years old

✅ identify as Black/Asian/Brown/People of Colour or Mixed Heritage?

Click below to sign up and find out more!

https://forms.gle/mQBvscXCZChL3PKt8

What it involves:

  • An online individual interview about your experience of cancer and care
  • About an hour
  • Participants will receive £10 voucher

☀️ You deserve better care, help us make a difference. ☀️

Please share wherever appropriate, as it is so important to improve our cancer care in the future, and Lynette would be extremely grateful!

[ad_2]

Source link

Receiving a Blood Transfusion During Cancer: What to Know and What to Expect

Posted on by Pencis

[ad_1]

Richard A. Larson, MD, is a professor of medicine in the Section of Hematology/oncology and director of the Hematologic Malignancies Clinical Research Program at the University of Chicago. He received his medical degree from the Stanford University School of Medicine and completed his postdoctoral training in Internal Medicine, Hematology, and Medical oncology at the University of Chicago. Dr. Larson is also a member of the 2023 cancer.Net Editorial Board. View Dr. Larson’s disclosures.

A Blood transfusion is a medical procedure to give Blood, or parts of the Blood, to someone who needs it. Some people may need a Blood transfusion if they have a medical condition, such as cancer, that affects how the body produces Blood cells. They may also require a Blood transfusion if they lose Blood after surgery or are experiencing other causes of bleeding.

Here, learn more about why you might receive a Blood transfusion during cancer, what to expect during a Blood transfusion, and what to know about the side effects you may experience after receiving a transfusion.

Why might someone with cancer need a Blood transfusion?

People with cancer may require a Blood transfusion for various reasons, depending on their specific condition and treatment. These reasons might include:

  1. Chemotherapy-induced Anemia. Chemotherapy can suppress the bone marrow’s ability to produce red Blood cells, leading to Anemia. Anemia is when you have a low level of red Blood cells in your body. Blood transfusions replenish the red Blood cell count and can relieve symptoms such as fatigue, weakness, and shortness of breath.

  2. Surgery-related Blood loss. cancer surgery can cause bleeding, and if the patient’s Blood volume drops too low, a Blood transfusion may be needed to restore it to a safe level.

  3. Bone marrow failure and Thrombocytopenia (low platelet count). Certain cancers, such as leukemia or myeloma, predominantly affect the bone marrow and interfere with the production of normal Blood cells. This is called “pancytopenia.” These diseases, as well as Chemotherapy, can interfere with the normal production and function of platelets, which help the Blood to clot. Platelet transfusions can help prevent or control bleeding episodes in these patients.

  4. Support during a bone marrow transplant. Before a bone marrow transplant, a person typically received high-dose Chemotherapy and/or radiation therapy, which can damage the bone marrow and reduce its ability to produce Blood cells. Then, during a bone marrow transplant, the diseased bone marrow is replaced by healthy stem cells from the donor. Blood transfusions may be necessary during this period to support the patient until the transplanted stem cells begin to function and produce new Blood cells.

What are the different types of Blood transfusions?

Blood is made up of different parts, or components. These components include the liquid plasma, red Blood cells, white Blood cells, and platelets. Transfusion of whole Blood is less common than transfusion of one of the Blood components. For most types of Blood transfusions, the Blood used comes from a donor. Special measures are used to ensure that Blood donation is safe for both recipients and donors.

The different types of Blood transfusion that your doctor may recommend during cancer and its treatment include:

Plasma transfusion

Plasma is the liquid part of Blood that carries the Blood cells. It contains proteins that help the Blood clot. It can be frozen and stored. A plasma transfusion can be given to people who have bleeding disorders, certain types of cancer, or liver disease. It may also be given after surgery if the person had considerable Blood loss.

Red Blood cell transfusion

Red Blood cells are made in the bone marrow and carry oxygen to the tissues in the body. Red Blood cells contain hemoglobin, which is a protein that carries oxygen and gives Blood its red color. Bleeding that is caused by trauma, surgery, or certain diseases may lead to a low red Blood cell count. If a person has a low red Blood cell count, a red Blood cell transfusion may be needed. A red Blood cell transfusion is usually given when a person’s red Blood cell count or hemoglobin level drops low enough to cause symptoms such as dizziness, fatigue, or shortness of breath.

Platelet transfusion

A low platelet count is called Thrombocytopenia. A platelet transfusion may be needed if the bone marrow cannot make enough platelets, which may occur during cancer or its treatment. There is a risk of spontaneous bleeding if a person’s platelet count falls too low. Platelets may be given in advance if there is an increased risk of bleeding from a surgical procedure. Sometimes, platelet transfusions are not needed despite a low platelet count if there are no signs of bleeding.

White Blood cell or granulocyte transfusion

White Blood cells help the body fight infection. Granulocyte transfusions are rarely given. They are usually reserved for people who have a very low white Blood cell count, called leukopenia or neutropenia, as well as for people who have a severe infection that doesn’t respond to antibiotics. Instead of transfusing white Blood cells, doctors commonly give injections of white Blood cell growth factors that stimulate the body to make its own white Blood cells.

Autologous Blood donation

In some cases, a person can serve as their own Blood donor. When someone donates their Blood for their own use, it is called an “autologous Blood donation” or “autotransfusion.” People may donate their own Blood before undergoing surgery in case they need a Blood transfusion during or after the procedure. Generally, Blood can be stored for up to 42 days.

How is the Blood prepared for transfusion?

Blood products that are used in transfusions are treated in special ways to make them safe and to prevent reactions in the recipient. Blood products may be treated with radiation before they are transfused. Radiation doesn’t affect red Blood cells or platelets, but it stops white Blood cells from functioning. Special Blood filters may also be used that help remove white Blood cells. This process is called “leukocyte reduction,” and it is used to help prevent a reaction in Blood transfusion recipients.

What should I expect during a Blood transfusion?

If your doctor has recommended that you receive a Blood transfusion, you will have a Blood test to find out your Blood type and Rhesus (Rh) factor. There are 4 Blood types: A, B, AB, or O. The Rh factor is an antigen that is found on the surface of some red Blood cells, making the cells “Rh-positive.” This information is important to know so that you receive Blood from a donor who matches your Blood type and Rh factor.

The Blood bank takes important precautions to prevent the recipient from having a reaction to the donated Blood. They cross-match the donor’s Blood to check that it matches and is compatible with the recipient’s Blood type. The health care team also carefully checks the donated Blood to make sure the right type of Blood is given to the right person. Before a transfusion, you may be given acetaminophen or antihistamines, such as diphenhydramine, to help prevent mild reactions.

During a Blood transfusion, an intravenous (IV) needle is inserted into a vein in your hand or arm. A bag of specially selected and matched Blood cells is hung on a pole, and the Blood flows from the bag through the IV and into your vein. Most of the time, people don’t feel any discomfort when the Blood goes in. However, the Blood is refrigerated, so it may feel a little cold.

During the transfusion, the nurse will monitor your temperature, Blood pressure, and heart rate. The nurse will also watch for any rash or signs of an allergic reaction. A red Blood cell transfusion usually takes between 2 and 3 hours. Platelet transfusions are shorter.

What are the possible side effects of a Blood transfusion?

A Blood transfusion is typically a very safe procedure, and the benefits of receiving a transfusion typically outweigh the possible risks. Adults or children who have received several Blood transfusions may have a higher risk of reacting to later Blood transfusions.

The health care team will watch you closely during a Blood transfusion to monitor for possible side effects. Although uncommon, some side effects that may occur during or after a Blood transfusion include:

  • Fever, chills, headache, or nausea. These symptoms can be caused by a reaction between the recipient’s immune system and the cells or proteins from the donated Blood. When this happens, the nurse may stop the transfusion and give a fever-reducing medicine. When the person’s temperature is back to normal, the transfusion can usually continue.

  • Allergic reaction. An allergic reaction can occur if the recipient’s immune system reacts to proteins in the donated Blood. These reactions may include hives or itching. In rare cases, a Blood transfusion can cause anaphylaxis, which is a severe and sometimes life-threatening allergic reaction. If an allergic reaction occurs, the transfusion is stopped and allergy medicines such as antihistamines and steroids are given. If the reaction is mild, the transfusion can start again. If the reaction is more serious, the transfusion is stopped.

  • Hemolytic reaction. This type of reaction is very rare but can occur when the donor’s and recipient’s Blood types do not match. During a hemolytic reaction, the recipient’s antibodies attack the transfused red Blood cells, causing them to break down, or hemolyze. The recipient develops fever, chills, or chest and lower back pain. This reaction can be mild or more severe. If severe, a hemolytic reaction can result in kidney damage or even death.

  • Transfusion-related acute lung injury (TRALI). This is a reaction of the recipient’s immune system to substances in the transfused Blood. TRALI damages lung tissue and causes fluid to accumulate in the lungs. TRALI may be immediate or delayed and causes difficulty breathing. Treatment for TRALI may include being given oxygen.

  • Circulatory overload. This occurs when the recipient’s circulatory system has too much Blood volume in it, which can cause difficulty breathing and heart failure. Circulatory overload is more likely to occur in older individuals and those with long-standing Anemia or heart problems. It is treated by stopping the transfusion, giving oxygen, and using a diuretic medicine to increase urination and lower the plasma volume.

  • Iron overload. Iron is present in red Blood cells and can build up after multiple Blood transfusions are given. Too much iron can damage the heart, liver, and other organs. Iron overload is usually treated with a chelating agent that binds to excess iron, causing it to be eliminated through the urine.

  • Infectious disease. The Blood you will receive during a transfusion is extremely safe because the Blood is tested for infectious organisms, and potential donors are carefully screened. However, there is a very small chance that an infectious disease may be transmitted through a Blood transfusion. Hepatitis virus and cytomegalovirus (CMV) are 2 viruses that can be transmitted through Blood transfusion. The human immunodeficiency virus (HIV), which causes acquired immune deficiency syndrome (AIDS), can also be transmitted through Blood.

Be sure to talk with your health care team if you have any questions or concerns about the Blood you will be receiving during your transfusion, how the Blood was tested and prepared, and what side effects might be possible after receiving a transfusion.

[ad_2]

cancer.net/blog/2023-10/receiving-Blood-transfusion-during-cancer-what-know-and-what-expect”>Source link

2021 Year in Review | CancerCare

Posted on by Pencis

[ad_1]

It’s hard to believe that 2021 is nearly over! Throughout the year, cancerCare has continued to support the growing and changing needs of those impacted by a cancer diagnosis. We are excited to share a selection highlights and achievements:

In January, we published the updated 2021 edition of our Helping Hand guide. This guide offers information for organizations offering practical and financial support and the 2022 edition will be published soon. In the meantime, search our Online Helping Hand for resources.

Our Pen Pal Program helps older adults reduce feelings of isolation. To mark National Volunteer Month, we interviewed oncology social worker Danielle Saff, MSW, LMSW, and our program partner, Caring for Seniors founder Nina Rawal.

alt textOur first-ever virtual gala raised over $800,000 to support our free programs and services! The event included unforgettable auction items and a performance from Tony Award-winner Laura Benanti.

We partnered with Gryt Health to share the wisdom of one of our social workers, Charlotte Ference, MSW, LMSW, about mental health and coping with cancer.

Our dedicated team planned a full virtual weekend of activities for families coping with the loss of a loved one. cancerCare’s first all-virtual Healing Hearts Family Bereavement Camp was a resounding success!

We took a look back at the first year of our free telephone case management service, helping clients overcome barriers to care.

alt textIn August, we launched Magnolia Purpose in Planning™ in partnership with Triage cancer. Magnolia Purpose in Planning™ connects people affected by cancer to practical and legal resources they need to plan for the future.

To celebrate cancer Out Loud’s season 4 launch, we looked back at the program’s beginnings and its future in a two-part interview with staff.

Our CEO, Patricia J. Goldsmith, was named to the Forbes 50 Over 50 Vision List, alongside figures like Geena Davis, Eileen Fisher and Wally Funk.

The cancerCare Young Professionals Committee’s Scholarship Program re-opened for young adults who have lost a parent to cancer. To commemorate the passing of former YPC board member and client Seynabou Ba, we also created The Seynabou Ba Fund thanks to an anonymous donor.

alt textOne hundred and forty children and teens received backpacks and school supplies as part of our annual Back-to-School Program.

In October, for Breast cancer Awareness Month, we partnered with Awe Inspired to share information on body image and post-treatment survivorship.

For Lung cancer Awareness Month, Long Island Social Services Director Winfield Boerckel, MSW, MBA, LCSW-R, shared his insights and observations after a 25-year career in social work and lung cancer advocacy. Win will be retiring at the end of this year, and we salute him for a quarter century of serving the lung community!

cancerCare is able to serve thousands of clients across the nation each year thanks to the generosity of our supporters. We are grateful each day for the impact we are able to have on those coping with a cancer diagnosis. If you would like to support our free programs and services, please consider making a donation to cancerCare.



[ad_2]

Source link

Liver cancer: Risk factors and prevention

Posted on by Pencis

[ad_1]

cancer.jpg” data-src=”https://scx2.b-cdn.net/gfx/news/hires/2022/liver-cancer.jpg” data-sub-html=”Credit: Pixabay/CC0 Public Domain”>

cancer.jpg” alt=”liver cancer” title=”Credit: Pixabay/CC0 Public Domain” width=”800″ height=”530″/>
Credit: Pixabay/CC0 Public Domain

October is Liver cancer Awareness Month, which makes this a good time to learn more about risk factors for liver cancer and what you can do to prevent it.

More than 41,000 new cases of primary liver cancer and intrahepatic bile duct cancer will be diagnosed in the U.S. this year, and nearly 30,000 people will die of these diseases, according to the American cancer Society.

Liver cancer is cancer that begins in the cells of your liver, which is a football-sized organ in the upper right portion of your abdomen. The liver is essential for digesting food and ridding your body of toxic substances.

Intrahepatic bile duct cancer, which sometimes is classified as a type of liver cancer, occurs in the parts of the bile ducts within the liver. Bile ducts carry bile, a digestive fluid, and they connect your liver to your gallbladder and small intestine.

Risk factors

Factors that increase the risk of primary liver cancer include:

  • Chronic infection with HBV or HCV. Chronic infection with the hepatitis B virus (HBV) or hepatitis C virus (HCV) increases your risk of liver cancer.
  • Cirrhosis. This progressive and irreversible condition causes scar tissue to form in your liver and increases your chances of developing liver cancer.
  • Certain inherited liver diseases. Liver diseases that can increase the risk of liver cancer include hemochromatosis and Wilson’s disease.
  • Diabetes. People with this Blood sugar disorder have a greater risk of liver cancer than those who don’t have diabetes.
  • Nonalcoholic fatty liver disease. An accumulation of fat in the liver increases the risk of liver cancer.
  • Exposure to aflatoxins. Aflatoxins are poisons produced by molds that grow on crops that are stored poorly. Grains and nuts can become contaminated with aflatoxins and end up in foods made of these products.
  • Excessive alcohol consumption. Consuming more than a moderate amount of alcohol daily over many years can lead to irreversible liver damage and increase your risk of liver cancer.

Prevention

Strategies for preventing liver cancer include:

  • Reduce your risk of cirrhosis. Cirrhosis is scarring of the liver, and it increases the risk of liver cancer. You can reduce your risk of cirrhosis if you drink alcohol in moderation, if at all, and maintain a healthy weight.
  • Get vaccinated against hepatitis B. You can reduce your risk of hepatitis B by receiving the hepatitis B vaccine. The vaccine can be given to almost anyone, including infants, older adults and those with compromised immune systems.
  • Take measures to prevent hepatitis C. No vaccine for hepatitis C exists, but you can reduce your risk of infection by taking care to avoid unprotected sex with a partner infected with HBV, HCV or any other sexually transmitted infection. Don’t inject illegal drugs. If you do, make sure any needle you use is sterile and don’t share it. And before getting a piercing or tattoo, check out the shops in your area and ask staff members about their safety practices. Needles that are not properly sterilized can spread the hepatitis C virus. Seek treatment for hepatitis B or hepatitis C.
  • Treatments are available for hepatitis B and hepatitis C infections. Research shows that treatment can reduce the risk of liver cancer. Ask your health care professional about liver cancer screening.
  • For the general population, screening for liver cancer hasn’t been proved to reduce the risk of dying of liver cancer, and it isn’t generally recommended. People with conditions that increase the risk of liver cancer, including hepatitis B, hepatitis C and liver cirrhosis, might consider screening. Discuss the pros and cons of screening with your health care team. Together you can decide whether screening is right for you based on your risk. Screening typically involves a Blood test and an abdominal ultrasound exam every six months.

Citation:
Liver cancer: Risk factors and prevention (2023, October 14)
retrieved 15 October 2023
from https://medicalxpress.com/news/2023-10-liver-cancer-factors.html

This document is subject to copyright. Apart from any fair dealing for the purpose of private study or research, no
part may be reproduced without the written permission. The content is provided for information purposes only.



[ad_2]

cancer-factors.html”>Source link

Private vs NHS Cancer Treatment

Posted on by Pencis

[ad_1]

As things get more and more desperate in the cancer world the advertising for private treatment and test etc is being ramped up. Naturally, rather than sitting on a never ending waiting list, many people are tempted to take the private route, if they have the funds. In my opinion this is ok for many of the more basic procedures and tests. However cancer is a lot more complex than that, and can throw up situations that nobody could foresee.

Back in 2007 when I was first diagnosed, I did have private healthcare cover, but chose to stay on the NHS path. Of course, things were very different then in cancer, than they are today. With all the complex treatment I have received I know for a fact that I have cost millions so far. Most of that would not have been covered, especially for in excess of 16 years, with ongoing complications. Please have a check through some of the positives and negatives before you make your decision.

cancer Treatment in the UK: Navigating Your Options

A cancer diagnosis leaves you facing many difficult decisions. One of the first is whether to pursue treatment through the NHS or private healthcare. It’s a complex choice with pros and cons to weigh carefully. This in-depth blog examines the key factors to consider when deciding between private and NHS cancer care.

Wait Times

One major advantage of private treatment is more rapid access to tests and specialists. After an urgent GP referral, NHS guidelines say you should start treatment within 62 days. However, waits can extend beyond this target during busy periods, averaging around 80 days. Delays happen due to limited equipment, staff shortages, high demand, and other constraints. With private care, you’ll likely begin the diagnostic process within days or weeks, then swiftly proceed to treatment. This faster timeline provides comfort and can be critical for cancers that are aggressive or fast-spreading.

On the other hand, NHS wait times for common cancer types may be reasonable if you have an early stage, non-urgent case. Waits also depend on your location – certain NHS trusts consistently hit targets, while others lag behind. Weigh your personal risk factors and cancer subtype when deciding if NHS wait times could impact outcomes. Know your rights to initiate private care if the NHS cannot start treatment within 62 days.

Access to New drugs and Innovative Treatments

cancer-treatment/cyberknife-design-19/” data-orig-file=”https://mlcuepl9ewv1.i.optimole.com/w:auto/h:auto/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Cyberknife-design-19.png” data-orig-size=”1140,597″ data-comments-opened=”1″ data-image-meta=”{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"}” data-image-title=”Cyberknife-design-19″ data-image-description=”” data-image-caption=”” data-medium-file=”https://mlcuepl9ewv1.i.optimole.com/w:300/h:157/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Cyberknife-design-19.png” data-large-file=”https://mlcuepl9ewv1.i.optimole.com/w:1024/h:536/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Cyberknife-design-19.png” decoding=”async” src=”https://mlcuepl9ewv1.i.optimole.com/w:300/h:157/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Cyberknife-design-19.png” alt=”Cyberknife machine” class=”wp-image-11857 lazyload jetpack-lazy-image” style=”width:430px;height:225px” width=”430″ height=”225″ data-lazy-src=”https://image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7?is-pending-load=1″ old-srcset=”data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7″/>

Private facilities often provide the latest cancer treatments months before they are available on the NHS. This early access includes emerging immunotherapy drugs, targeted therapies, robotic surgery techniques, advanced cyberknife radiation, and more. By the time NHS funding and approval happens, a new drug or technology could be up to a year old. This NHS delay is due to cost analysis requirements and slower policy change

While cutting edge treatments can extend and improve life for cancer patients, risks and benefits are still being established. The innovative nature means long term effects are unknown. NHS doctors follow strict protocols to provide treatments proven highly effective, although considered “standard” versus “revolutionary”. Discuss all pros and cons of new versus established approaches with specialists to make the best decision for your diagnosis.

Choice of Specialists and Hospitals

With private insurance or self-pay, you can pick any qualified specialist in the UK. This allows shopping around to find experts best suited to treat your cancer type and stage. Check credentials, read reviews, understand success rates. You may even choose facilities like Harley Street clinics or prestigious hospitals like The London oncology Clinic. This flexibility and control over physicians can provide added confidence in your care team.

On the NHS, your specialist is assigned based on location and availability. However, UK oncologists undergo rigorous training and demonstrate extensive knowledge. NHS hospitals also employ strict credentialing and performance standards. While your doctors may not be household names, they have the skills and experience needed to deliver high quality treatment. Seek multiple opinions and factor doctor rapport into your NHS/private decision.

Hotel-Like Amenities and Facilities

Private UK clinics aim to make patients comfortable by providing premium facilities more akin to hotels than hospitals. Expect freshly renovated private rooms, better food options, lounges with coffee bars and snacks, etc. The pleasant aesthetics and surroundings can enhance healing and quality of life during treatment. Additionally, private hospitals invest heavily in the latest cancer screening, imaging, and treatment technology to improve precision.

cancer-treatment/private-care-18/” data-orig-file=”https://mlcuepl9ewv1.i.optimole.com/w:auto/h:auto/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Private-care-18.png” data-orig-size=”1140,597″ data-comments-opened=”1″ data-image-meta=”{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0"}” data-image-title=”Private-care-18″ data-image-description=”” data-image-caption=”” data-medium-file=”https://mlcuepl9ewv1.i.optimole.com/w:300/h:157/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Private-care-18.png” data-large-file=”https://mlcuepl9ewv1.i.optimole.com/w:1024/h:536/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Private-care-18.png” decoding=”async” src=”https://mlcuepl9ewv1.i.optimole.com/w:1024/h:536/q:mauto/f:best/https://www.chris-cancercommunity.com/wp-content/uploads/Private-care-18.png” alt=”Private hospital room ” class=”wp-image-11856 lazyload jetpack-lazy-image” style=”width:446px;height:233px” width=”446″ height=”233″ data-lazy-src=”https://image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7?is-pending-load=1″ old-srcset=”data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7″/>

However, don’t discount NHS capabilities. Critical equipment like PET and CT scanners meet rigorous standards at NHS cancer hubs. What NHS facilities may lack in luxury, they make up for in expertise and capacity to handle complex cases. Still, outdated or overloaded equipment can lead to frustrating delays at times. If your local trust has known equipment shortages, going private may provide better access.

Integrated Support Services

Another private care advantage is access to comprehensive support services all under one roof. This includes counselling, nutrition advice, physical therapy, pain management, wig fittings, support groups and more. Having coordinated specialists makes this holistic care more convenient. NHS providers have been slow to take this integrated approach, but select trusts now offer more robust services for counselling, rehab, and lifestyle needs. Check what’s available through both your local NHS trust and private options.

Costs and Medical Insurance

The most prohibitive downside of private cancer care is cost, with no price regulation. You pay out-of-pocket for all expenses unless you have extensive health insurance. Without insurance, private cancer treatment can soar above £20,000 for testing, surgery, drugs, hospital fees and more. Even low-grade, early cancers often exceed £15,000 privately. Compare this to NHS care which is free at point of use for UK residents.

Many Brits take out medical insurance, but most policies have limits or exclusions for serious illnesses like cancer. Pre-existing conditions may also disqualify you from full coverage. Expect costs for drugs, alternative treatments, travel or clinical trial entry to fall outside policy limits. Read fine print carefully and get cost estimates beforehand.

Weighing Up Your Options

In summary, private cancer care offers faster access, more control over specialists, access to emerging treatments, premium facilities and amenities, and integrated support services. But quality NHS treatment has its own strengths like rigorous standards, highly qualified teams, and avoiding financial strain.

Think critically about your unique diagnosis, risk level, finances and personal priorities. Get multiple opinions on optimal treatment plans. Discuss options frankly with both private and NHS oncologists. This allows making the most informed decision possible on whether private or NHS cancer care better suits your medical and lifestyle needs.

As always these are my own opinions based on personal experiences. Please feel free to share your own below.

[ad_2]

cancer-treatment/”>Source link

Palliative and Supportive Care for Children With Cancer: An Expert Perspective

Posted on by Pencis

[ad_1]

Palliative and supportive care plays an important role in caring for children with cancer. Through palliative and supportive care, children and their families receive help with managing the various side effects of cancer and its treatment, including its physical, emotional, social, and financial effects.

In this podcast, Abby Rosenberg, MD, MS, MA, discusses what parents should know about pediatric palliative and supportive care, including what it is, what to expect when meeting with the palliative and supportive care team, and how this type of care helps support children with cancer and their families.

  • What is palliative and supportive care? [01:47]

  • How is palliative and supportive care different than hospice or end-of-life care? [03:20]

  • How can parents know if their child is ready to receive palliative and supportive care? [04:04]

  • How does the palliative and supportive care team provide support for children with cancer? [04:46]

  • What should parents and their children expect when meeting with members of the palliative and supportive care team? [05:41]

  • Does palliative and supportive care also include support for the parents and family members of children with cancer? If so, what does this support look like? [07:00]

Dr. Rosenberg is the chief of pediatric palliative care at the Dana-Farber cancer Institute and Boston Children’s Hospital in Boston, Massachusetts. Dr. Rosenberg has no relationships relevant to this content to disclose.

Was this podcast useful? Please subscribe, rate, and review cancer.Net Podcasts wherever you listen to podcasts. This prerecorded podcast can be listened to online or downloaded to your computer. A transcript is also available. For more information, visit the cancer.Net podcast page.

cancer.Net podcasts are edited for length and content.

[ad_2]

cancer.net/blog/2023-10/palliative-and-supportive-care-children-with-cancer-expert-perspective”>Source link

Resources for Spanish-Speaking Individuals Impacted by Cancer

Posted on by Pencis

[ad_1]

Resources for Spanish-Speaking Individuals Impacted by cancer/Recursos para personas de habla hispana afectadas por el cáncer

alt text

En esta entrada de blog de preguntas y respuestas, y como parte del mes Nacional de la Herencia Hispana, la coordinadora del programa “Insights” de CancerCare y trabajadora social de oncología, Sara Grisales Jaramillo, LMSW, comenta los servicios y recursos en español de cancerCare para personas afectadas por el cáncer

¿Podría compartir con nosotros algunos de los retos a los que se enfrentan las personas y familias hispanas a la hora de enfrentarse al diagnóstico y tratamiento del cáncer?
La comunidad hispana/latina experimenta varios retos únicos. Algunos de los más importantes son la falta de acceso a la educación de salud, incluida la comprensión de qué es el cáncer y en qué puede consistir su tratamiento. El estatus migratorio es también uno de los mayores impactos en la comunidad hispana. El estatus migratorio está directamente relacionado con el acceso al seguro médico y a la atención médica. Muchas personas de la comunidad hispana luchan por conseguir servicios de apoyo adecuados, así como opciones de tratamiento adecuadas, educación sobre el plan de tratamiento y como tomar decisiones compartidas. Comunicación con el equipo medico y el nivel de comodidad de los pacientes y cuidadores es afectado por las barreras lingüísticas.

¿Qué recursos ofrece CancerCare específicamente adaptados para apoyar a las personas hispanas que están navegando por las complejidades de la atención del cáncer?
CancerCare ofrece servicios en español, tales como consejería individual, grupos de apoyo y navegación de recursos. Estos servicios abordan las necesidades emocionales de las personas hispanas que están luchando con los impactos del cáncer. Nuestros servicios también proporcionan a los individuos las herramientas para navegar por tales complejidades y recursos que abordan las necesidades básicas. Nuestros servicios capacitan a los clientes para abogar por sí mismos.

¿Podría destacar alguna iniciativa o programa culturalmente sensible que CancerCare haya desarrollado para garantizar que los clientes latinos reciban la mejor atención y asistencia posibles?
cancerCare ha desarrollado talleres en español para educar a los hispanos sobre cómo enfrentar un diagnóstico de cáncer, al igual que las formas de conseguir recursos. cancerCare también ofrece un grupo de apoyo a pacientes en español que ayuda a establecer una comunidad entre ellos. cancerCare tiene una gran cantidad de recursos dirigidos específicamente a la comunidad hispana.

Las barreras lingüísticas pueden ser a menudo un reto importante. ¿Cómo aborda CancerCare la accesibilidad lingüística para garantizar que los hispanohablantes puedan acceder a información y apoyo vitales relacionados con el cáncer?
cancerCare ofrece todos los servicios en español. Desde que un cliente contacta inicialmente con cancerCare, se le pone en contacto con un trabajador social que habla español. cancerCare también tiene publicaciones y recursos en español. Las publicaciones en español contienen información sobre las formas de enfrentar al cáncer, los efectos secundarios, enfrentar las necesidades de ser cuidador y mucho más. cancerCare también cuenta con personal bilingüe y bicultural dentro de departamentos como la unidad de asistencia financiera y el departamento de trabajo social. Nuestro personal bilingüe y bicultural interactúa directamente con los clientes de cancerCare eliminando la barrera del idioma.

¿Qué consejos o recomendaciones tiene para las personas y familias latinas que se enfrentan actualmente a un diagnóstico de cáncer y cómo pueden aprovechar al máximo los recursos disponibles durante este importante mes de concienciación?
La experiencia del cáncer puede ser aislante cuando los clientes se mantienen conectados, se reducen los sentimientos de depresión. Mantenerse en contacto también permite a las personas sentirse capacitadas para abogar por sí mismas y tomar decisiones informadas sobre su atención o la de sus seres queridos. Conectarse a través de un grupo de apoyo también puede ser útil, ya que escuchar otras experiencias puede ayudar a encontrar maneras de hacer frente a los desafíos y encontrar un sentido de pertenencia y comunidad.

In this guest Q&A blog post and as part of National Hispanic Heritage Month, cancerCare’s Insights Program Coordinator and oncology social worker, Sara Grisales Jaramillo, LMSW, discusses cancerCare’s Spanish languages services and resources for people impacted by cancer.

Can you share some insights into the unique challenges that Hispanic individuals and families might face when dealing with a cancer diagnosis and treatment?
The Hispanic/Latinx community experience several unique sets of challenges. Some of the most prominent challenges include lack of access to health literacy, including understanding what cancer is and what cancer treatment may consist of. Immigration status is also one of the biggest impacts in the Hispanic community. Immigration status is directly connected to access to health insurance and health care. Many individuals in the Hispanic community struggle with getting proper supportive services as well as adequate treatment options, treatment plan education and shared decision making. Language barriers also impact communication with medical teams and the comfort levels of patients and caregivers.

What resources does cancerCare offer specifically tailored to support Hispanic individuals who are navigating the complexities of cancer care?
cancerCareprovides Spanish-speaking services, such as individual counseling, support groups and resource navigation. These services address the emotional needs of Spanish-speaking individuals who are struggling with the impacts of cancer. Our services also provide individuals the tools to navigate such complexities and resources that address basic needs. Our services empower clients to advocate for themselves.

Could you highlight any culturally sensitive initiatives or programs that cancerCarehas developed to ensure that Latinx clients receive the best possible care and assistance?
cancerCare has developed Spanish-speaking workshops to educate Spanish speakers on how to face a cancer diagnosis as well as ways seek resources. cancerCare also provides a Spanish-speaking patient support group that aids in establishing community. cancerCare has a plethora of resources geared specifically towards the Hispanic community.

Language barriers can often be a significant challenge. How does cancerCare address language accessibility to ensure that Spanish-speakers can access vital cancer-related information and support?
cancerCare provides its services in Spanish. From when a client initially contacts cancerCare, they are connected with a Spanish-speaking social worker. cancerCare also offers publications in Spanish. Spanish publications contain information on ways to cope with cancer, side effects and coping as a caregiver. cancerCare also has bilingual and bicultural staff within departments like the financial assistance unit and the social work department. Our bilingual and bicultural staff interact directly with cancerCare clients eliminating the language barrier.

What advice or recommendations do you have for Latinx individuals and families who are currently dealing with a cancer diagnosis and how can they make the most of the resources available during this important awareness month?
The cancer experience can be isolating. When individuals stay connected, it reduces feelings of depression. Staying connected also allows individuals to feel empowered to advocate for themselves and make informed decisions about their or their loved one’s care. Connecting through a support group can also be helpful, as hearing other experiences can help with finding ways to cope with the challenges and finding a sense of belonging and community.



[ad_2]

Source link

Host genetics helps explain childhood cancer survivors’ mortality risk from second cancers

Posted on by Pencis

[ad_1]

gene variant
Credit: Unsplash/CC0 Public Domain

The population of childhood cancer survivors in the U.S. is increasing, with an overall childhood cancer survival rate greater than 85% five years after diagnosis. However, survivors can still be at increased risk of various health conditions, including second cancers.

Using data from the Childhood cancer Survivor Study (CCSS) and the St. Jude Lifetime Cohort Study (St. Jude Life), scientists at St. Jude Children’s Research Hospital have identified a genetic explanation for why a small proportion of survivors is more likely to develop second cancers and why these cancers may be more severe or deadly.

The findings, which will inform genetic counseling, testing and adoption of personalized cancer screening and prevention strategies, were published today in The Lancet oncology.

The St. Jude group showed that survivors with pathogenic (damaging) genetic variants in specific genes, called cancer-predisposing variants, are at an increased risk of developing second (subsequent) cancers as adults, and those cancers are more likely to be severe and deadly.

The scientists had previously identified that survivors with pathogenic variants in one of 60 different cancer-predisposing genes or 127 DNA damage repair genes were more likely to experience a second or subsequent cancer. This study extends that research to show a direct connection between cancer-predisposing variants and increased second-cancer-related mortality.

Many of these genetic variants are known to be causally linked to cancers. For example, the tumor suppressor gene TP53 is one of the 60 genes included in the analysis. The key to the discovery’s utility is that these variants are present in the DNA of patients when they are diagnosed with cancer as children, allowing for an individualized medicine approach to be developed early in life for each survivor.

By promoting better understanding of the effect such genes can have on future cancer risk and its outcome beyond the primary childhood cancer, the study will help inform efforts to prevent second cancers and improve the outcomes in these individuals.

“Our study pinpoints that clinical genetic testing to screen for and identify if survivors are carriers of these pathogenic variants could lead to screening and early interventions for those at higher risk to develop deadly second cancers, potentially saving their lives,” said senior corresponding author Zhaoming Wang, Ph.D., St. Jude Department of Epidemiology and cancer Control.

cancer prevention in adult childhood cancer survivors

The total number of childhood cancer survivors who develop second or subsequent cancers is small (<10% based on current studies), and the percentage of survivors who carry cancer-predisposing variants is low (about 6%). Together, these factors have made it extremely challenging to study and understand the genetic risks for second cancers and their outcome in this population.

To reach statistically meaningful results, Wang and his collaborators combined whole genome/exome sequencing and clinical data from over twelve thousand survivors of childhood cancer. The study combined data from North America’s two largest survivorship studies, the CCSS and St. Jude LIFE cohorts.

“This is the first comprehensive study looking for the genetic reason for late mortality—specifically late mortality due to second cancers,” Wang said. “Now we know that cancer-predisposing variants contribute to the risk of death from second cancer.”

Increased surveillance may help limit the impact of these cancer-predisposing variants as childhood cancer survivors grow into adulthood. By knowing which survivors are at greater risk, health care providers may be able to recommend personalized cancer screening, which may lead to the detection of additional cancers at their earliest and most treatable stage.

These variants are part of the inherited (germline) DNA with which people are born. This means they can be detected in children when they are first diagnosed with childhood cancers, arming survivors with the knowledge they need to lower their risk later in life.

“Even before finishing childhood cancer treatment, clinicians can recommend referral to do genetic counseling so that survivors with these variants can seek cancer prevention strategies later on,” Wang said. “Depending on the gene harboring the variant, survivors that are carriers may be able to implement prevention strategies to safeguard their long-term health.”

More information:
The Lancet oncology (2023).

Provided by
St. Jude Children’s Research Hospital

Citation:
Host genetics helps explain childhood cancer survivors’ mortality risk from second cancers (2023, October 2)
retrieved 3 October 2023
from https://medicalxpress.com/news/2023-10-host-genetics-childhood-cancer-survivors.html

This document is subject to copyright. Apart from any fair dealing for the purpose of private study or research, no
part may be reproduced without the written permission. The content is provided for information purposes only.



[ad_2]

cancer-survivors.html”>Source link